A review of the care of children and young adults with Primary Ciliary Dyskinesia (PCD) in England (for people with PCD aged 12 and over)

A review of the care of children and young adults with Primary Ciliary Dyskinesia (PCD) in England (for people with PCD aged 12 and over)

We would love to hear about your experiences of the care that you receive and find out what your ideal PCD service would look like.

If you have PCD, are treated in the childrens service and aged 12 or over please complete this survey so that we can try to improve the care you receive.

The following survey should take between 5 - 10 minutes depending on how much you'd like to tell us? If there are any questions that you don't understand please ask your parents or guardian. If you want to save the survey and finish filling it out at another time, you can press the 'save and quit' button in the top right hand corner of each section screen, and follow the instructions / link of how to log in and finish the survey at another time.