Impact on health and wellbeing of sharing visual art online and offline

Impact on health and wellbeing of sharing visual art online and offline

Participant Information Sheet

Version 1: 29/08/2019

Study Title: Impact on health and wellbeing of sharing visual art online and offline

Researchers: Cindy Brooks, Research Fellow, Dr Catherine Matheson-Monnet (Principal Investigator), Senior Research Fellow and Dr Anastasios Argyropoulos, Research Fellow, Centre for Implementation Science, University of Southampton

UoS Ethics reference:    52622                    
You are being invited to take part in the above research study. This study is being hosted by the Centre for Implementation Science at the University of Southampton. To help you decide whether you would like to take part or not, it is important that you understand why the research is being done and what it will involve. Please read the information below carefully and ask questions if anything is not clear or you would like more information before you decide to take part in this research.  You may like to discuss it with others but it is up to you to decide whether or not to take part.

What is the research about?

We are researchers based at the Centre for Implementation Science at the University of Southampton. The aim of the study is to gain a better understanding of people’s perceptions and experiences of sharing visual art online and offline to explore its impact on health and wellbeing.

Why have I been asked to participate?

You have been asked to participate because you meet the inclusion criteria of being over 18 and create and share your visual art online.

What will happen to me if I take part?

You will be asked to complete an online survey about your experience of sharing your visual art online. You will be presented with this participant information sheet before completing the survey. The survey will include screening questions related to the above inclusion criteria and then questions about your experience of sharing your visual art online and how this has impacted on your health and wellbeing. Once you have completed the survey, you will be presented with a debriefing statement.  If you decide to take part in the survey, your identity will be anonymous (you will not be named or be able to be identified). The questionnaire will take approximately 20 minutes to complete.

Are there any benefits in my taking part?

There are no direct benefits to taking part. No money will be paid for taking part. However, you may benefit as sharing your experience may be helpful for you. Your participation will also help the study team better understand the experiences of people who share their artwork online.

Are there any risks involved?

It is not expected that the study involves any specific risks. Although it is unlikely, if you do experience discomfort or distress carrying out the questionnaire, you can contact Samaritans if based in the UK and Ireland on 116 123, or by email: jo@samaritans.org .If you are based outside the UK and Ireland you can find a helpline in your country (if available) here: befrienders.org or email: jo@samaritans.org . If you take part in the survey, as the survey data will be anonymised it will not be possible to remove any data about you that has been collected up to the point of withdrawal.

What data will be collected?

The questionnaire will only collect anonymised personal data relating to gender, age-category, and impact on health and wellbeing of sharing visual art online. You will be asked questions on your experience of sharing visual art online and offline. You will not be named or be able to be identified in the survey. The research team will not know who you are. In order to increase the extent to which you will not be identifiable, we will make sure that when the survey is set up online (e.g. iSurvey, online surveys, SurveyMonkey) information about the device you are completing the survey on (e.g. your phone, computer or tablet) will not be recorded. This data will be anonymised and non-identifiable.

Will my participation be confidential?

Your participation and the information we collect about you during the course of the research will be kept strictly confidential. You will not be named or be able to be identified in the survey. The research team will not know who you are. When the survey is set up online (e.g. iSurvey, online surveys, SurveyMonkey) information about the device you are completing the survey on (e.g. your phone, computer or tablet) will not be recorded. Though the questionnaire will collect personal data relating to gender, age-category, and you will be asked to complete questions ranking the extent to which sharing art online has contributed positively to your physical health, mental health and wellbeing, this data will be anonymised and non-identifiable.

Anonymous data will be shared with the research study team. You will not be personally identified in any published material, but that what you say may be linked to someone who shares their visual art online, although, if applicable, every effort will be made to make you less easily identifiable. In line with University of Southampton policy data will be kept for a minimum of ten years.

Do I have to take part?

No, it is entirely up to you to decide whether or not to take part.

What happens if I change my mind?

You have the right to change your mind and withdraw at any time without giving a reason.

If you wish to withdraw from the study please contact Cindy Brooks, Research Fellow: C.F.Brooks@soton.ac.uk (023 8059 5906).

It is important to note, if you take part in the survey, as the survey data will be anonymised it will not be possible to remove any data about you that has been collected up to the point of withdrawal. Therefore, should you wish to withdraw from the survey after it has taken place, we will keep the information about you already obtained only for the purposes of achieving the objectives of the research study.

What will happen to the results of the research?

Your personal details will remain strictly confidential. Research findings made available in any reports or publications will not include information that can directly identify you without your specific consent. Anonymous data will be shared with the research team. Things that you state during the survey which are relevant to the study may be referred to anonymously and summarised using different words or quoted in reports, presentations and publications, academic or otherwise.

Where can I get more information?

If you want more information after reading this information sheet, you can contact: Cindy Brooks, Research Fellow, Centre for Implementation Science, University of Southampton, C.F.Brooks@soton.ac.uk (023 8059 5906)

What happens if there is a problem?

If you have a concern about any aspect of this study, you should speak to the researchers who will do their best to answer your questions:

Cindy Brooks, Research Fellow, Centre for Implementation Science, University of Southampton, C.F.Brooks@soton.ac.uk (023 8059 5906)

Dr Catherine Matheson-Monnet (Principal Investigator), Senior Research Fellow, Centre for Implementation Science, University of Southampton, C.B.Matheson@soton.ac.uk (023 8059 7041)

If you remain unhappy or have a complaint about any aspect of this study, please contact the University of Southampton Research Integrity and Governance Manager (023 8059 5058, rgoinfo@soton.ac.uk).

Data Protection Privacy Notice
The University of Southampton conducts research to the highest standards of research integrity. As a publicly-funded organisation, the University has to ensure that it is in the public interest when we use personally identifiable information about people who have agreed to take part in research.  This means that when you agree to take part in a research study, we will use information about you in the ways needed, and for the purposes specified, to conduct and complete the research project. Under data protection law, ‘Personal data’ means any information that relates to and is capable of identifying a living individual. The University’s data protection policy governing the use of personal data by the University can be found on its website (https://www.southampton.ac.uk/legalservices/what-we-do/data-protection-and-foi.page).

This Participant Information Sheet tells you what data will be collected for this project and whether this includes any personal data. Please ask the research team if you have any questions or are unclear what data is being collected about you. Our privacy notice for research participants provides more information on how the University of Southampton collects and uses your personal data when you take part in one of our research projects and can be found at http://www.southampton.ac.uk/assets/sharepoint/intranet/ls/Public/Research%20and%20Integrity%20Privacy%20Notice/Privacy%20Notice%20for%20Research%20Participants.pdf

Any personal data we collect in this study will be used only for the purposes of carrying out our research and will be handled according to the University’s policies in line with data protection law. If any personal data is used from which you can be identified directly, it will not be disclosed to anyone else without your consent unless the University of Southampton is required by law to disclose it.

Data protection law requires us to have a valid legal reason (‘lawful basis’) to process and use your Personal data. The lawful basis for processing personal information in this research study is for the performance of a task carried out in the public interest. Personal data collected for research will not be used for any other purpose. For the purposes of data protection law, the University of Southampton is the ‘Data Controller’ for this study, which means that we are responsible for looking after your information and using it properly. The University of Southampton will keep identifiable information about you for ten years after the study has finished after which time any link between you and your information will be removed.

To safeguard your rights, we will use the minimum personal data necessary to achieve our research study objectives. Your data protection rights – such as to access, change, or transfer such information - may be limited, however, in order for the research output to be reliable and accurate. The University will not do anything with your personal data that you would not reasonably expect.  If you have any questions about how your personal data is used, or wish to exercise any of your rights, please consult the University’s data protection webpage (https://www.southampton.ac.uk/legalservices/what-we-do/data-protection-and-foi.page) where you can make a request using our online form. If you need further assistance, please contact the University’s Data Protection Officer (data.protection@soton.ac.uk).

Thank you for taking the time to read the information sheet and considering taking part in the study.